Monday, October 5, 2009

31 for 21 Day 5

I don't know why I didn't label yesterday's post Day 4! Oh well! I guess my DS topic of the day is low muscle tone. Addy DEFINITELY has low muscle tone! ALL OVER! One myth of kiddos with DS is that their tongues are too large for their mouths. That's actually not true. I am a speech-pathologist and my very favorite program to use with my students is Talk Tools by Sara Rosenfield Johnson. Check out this very informative article that talks about the "myths"! Click HERE

Here's the "typical" posture of Addy's mouth:
She can definitely keep her tongue in her mouth, we tell her "put your tongue away" and she taps her tongue with her hand and in it goes. We just tell her and she does that, it's quite funny to watch!

Addy also has interesting ways to sit. She usually sits like this:
She sits like this because she gets more support through her hips and thighs (yes her tongue is out!). We really encourage her to sit indian style, which she will do, but this also another favorite position of hers, this was taken this evening:
And here are some of my favorite flexibility shots, she cracks me up!

9 comments:

My name is Sarah said...

This is Joyce. Oh my she is so cute. Wait until you see Sarah's post tommorrow, at age 20 the poses are the same but oh so envied in yoga class:) And the tongue, well we've worked on that too for 20 years but you will still see it come out from time to time.

Will you please email me your address so I can send you the gift certificate. sarahely8989@yahoo.com Thanks.

Lori said...

Love the pictures! I often find Anna in many of those same positions =) It sometimes looks painful how far they can stretch.
I love the one where she is bent in half asleep =)

Mary said...

Those sitting positions look oh so familar. Seriously painful looking to me but seem to bring comfort to the kiddos.

Lacey said...

Addy could be the poster child for DS. I love how she sits like that, it makes her legs look so little.

The VW's said...

MAN! Addy is TOO CUTE!!! I can't help but smile when I come to your blog! How can you not just eat her up??!!

I was always told that those with Down syndrome did have tongues that were too large for their mouths. But your explanation makes a lot more sense! Low tone!

We have friends that have a son with Down syndrome and they always comment on Gavin's ability to keep his tongue in his mouth. Their son always has his tongue out. Gavin has high tone, from his stroke, so this might explain why he keeps his mouth closed and his tongue in? Thanks for the lesson!

Mandy said...

Cammie can you move here??? I bought the whole talk tools kit and even the DVD's for our ESU unit and it still sits in a closed 2 years later :(
I do what I can and the boys use the honey bears but I so wish I could find someone GOOD that would help me with it!
Plus then if you moved here my daughter would be so happy because she's been asking for a little girl with Down Syndrome (we could babysit?)!
BTW she is the cutest little girl!

Mandy said...

closet, not closed - helps if you proof read before you hit publish!

ParkerMama said...

What a gorgeous little one you have!

Parker also was born with an imperforate anus and deals with pulmonary hypertension.

http://www.prayingforparker.com
@ParkerMama on Twitter

RK said...

Her flexibility looks awfully familiar! :o) Braska sits in her car seat and puts the bottoms of her feet/shoes against her cheeks. We're constantly saying, "Feet down. Feet down!"