Yesterday Addy went to the cardiologist to follow up on an irregular heartbeat that the GI doc in Kansas City said that he heard. We did an EKG and it was completely normal. Her cardiologist listened to her and didn't hear anything irregular. He did go ahead and put her on a 24 hour monitor just to be sure. She did so well wearing her "purse" lol. She's actually smiling in this pic even though she looks like she's in pain lol.
After we saw cardio we headed over to her surgeon's office. We haven't had to see them in about three years! The surgeon that actually did Addy's analplasty and pull through surgeries moved to Alaska awhile back but his nurse practioner was involved with all of Addy's surgeries is still here. She was so excited to see Addy :) She was amazed at how well she looks and how well she is doing. She was a bit shocked to see Addy's shirt that said "Big Sister to a Little Mister" lol. Addy told her all about "Jordy" :) She did a full exam and we are very thankful that she does not have an issue down there and does NOT need dilations that she did years ago :) She could tell she was pretty full though and ordered an x-ray. We went down to x-ray to take a pic of her belly. I was just there on Monday with Jordan because he needed his head x-rayed. He had severe torticollis and craniosynotosis as an infant and he has and he was there for his one year check. He's doing fine, just took five of us to get the x-ray! The techs were quite pleased that Addy, the perfect patient, just layed very still for her picture :) The film showed that Addy's colon is completely full :( so looks like we are going to be doing a cleanse over break. I'm quite irritated that KC didn't mention this a month ago (yes she compared films, no change). Since Addy was born with IA she has more of a chance to have the backed up issues than the leaky issues she has. The NP thinks this will be a huge help in all of the GI issues she's been having. I'm so hoping that she's right!
We turned in Addy's monitor today and saw her nutritionist. She's having us add some more water to her feedings so that may help things along too :)
This just has to be included because he's cute!
Friday, December 20, 2013
Wednesday, December 11, 2013
Having an eater
You know I had three children that I never thought a whole lot about their ability to eat. We definitely went through some sensory things with Cooper and he continues to be a very picky eater. We did go a couple of years with him throwing up a lot at meals, especially if he ate too fast or got a taste or a bit of texture that he didn't like. It seemed to happened most often at restaurants. That was always fun.
Then we got Addy. Feeding has been a major thing with her. There are times when I just want to give up and face the fact that she isn't going to eat. I am fine with that. It would probably be easier that way since she has such a major reaction to any milk/dairy. She is making progress. She's made very slow progress for years but it is progress :) She will now actually take a bite of food then immediately spit it out. But there was a time when we couldn't even put a spoon on her lips. She has come a long way. Knowing Addy I have a feeling that one day she's just going to eat :)
Well now we have this:
This boy can eat!
Then we got Addy. Feeding has been a major thing with her. There are times when I just want to give up and face the fact that she isn't going to eat. I am fine with that. It would probably be easier that way since she has such a major reaction to any milk/dairy. She is making progress. She's made very slow progress for years but it is progress :) She will now actually take a bite of food then immediately spit it out. But there was a time when we couldn't even put a spoon on her lips. She has come a long way. Knowing Addy I have a feeling that one day she's just going to eat :)
Well now we have this:
This boy can eat!
Friday, December 6, 2013
Tree Trimming
We had about 9 inches of snow yesterday and today so we were home for a snow day! Since we were all home (except Jarika of course) and Scott was working from home we were finally able to get our Christmas tree up!
This is the first year that Addy got into it :) It was so cute, she always wanted help to put the ornaments on even though she could do it :) I get my kids a Christmas ornament (or two or three lol) every year and Addy LOVED her Rapunzel one I got her this year. I just ordered her some Alvin and the Chipmunks too, she will go crazy over those!
Jordan was napping when we started decorating. That didn't last long and he didn't want to be left out. It's a good thing that the tree is in the basement and he is rarely down there. He REALLY wants to get a hold of every ornament on the tree! We will have to watch him like crazy on Christmas morning since the floor is now stained concrete and the ornaments will shatter. Not that I know that from experience or anything (yep, I'm the only one that dropped and broke an ornament).
Now I need to start wrapping some presents!
(No way to get all sides at once but love that we got to add a name this year to the family ornament!)
Jordan was napping when we started decorating. That didn't last long and he didn't want to be left out. It's a good thing that the tree is in the basement and he is rarely down there. He REALLY wants to get a hold of every ornament on the tree! We will have to watch him like crazy on Christmas morning since the floor is now stained concrete and the ornaments will shatter. Not that I know that from experience or anything (yep, I'm the only one that dropped and broke an ornament).
Now I need to start wrapping some presents!
Sunday, December 1, 2013
Thanksgiving
I can't believe how many pictures I did NOT take on Thanksgiving! I needed to get some pictures of all five kids together for Christmas cards and it was an epic fail. Completely forgot. So here are just a few pics of the amazingly wonderful day we had.
We are always welcomed to my brother's in-laws home for Thanksgiving. The kids have so much fun playing together and this past year we just have not the chance to get together as much as we'd like. Too many kids with different schedules :)
Jordan was fascinated with the Christmas tree. I had already decided not to put up the tree upstairs that I decorate with my purple ornaments and Snowbabies. It usually goes in the family room and that is where we always are. Glad I decided to forgo the tree. Jordan would have it destroyed in no time lol. He is walking now and I have a feeling that we would have broken purple ornaments everywhere!
So now it's time to get the decorating finished at our house :) I have some of the upstairs completed and haven't even touched the basement. Hopefully this week. The next two weekends are crazy busy so it's got to be done this week :) I hope everyone had a great Thanksgiving, we sure did :)
We are always welcomed to my brother's in-laws home for Thanksgiving. The kids have so much fun playing together and this past year we just have not the chance to get together as much as we'd like. Too many kids with different schedules :)
Jordan was fascinated with the Christmas tree. I had already decided not to put up the tree upstairs that I decorate with my purple ornaments and Snowbabies. It usually goes in the family room and that is where we always are. Glad I decided to forgo the tree. Jordan would have it destroyed in no time lol. He is walking now and I have a feeling that we would have broken purple ornaments everywhere!
So now it's time to get the decorating finished at our house :) I have some of the upstairs completed and haven't even touched the basement. Hopefully this week. The next two weekends are crazy busy so it's got to be done this week :) I hope everyone had a great Thanksgiving, we sure did :)
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