Well it's not broken

Addy had a very rough day today. She has pretty much cried since 4 am. Nothing has made her happy. She didn' t take a nap at all so I am hoping she will have a good night. My brother graciously offered to spend the night at the hospital tonight so Scott and I can both get a decent nights sleep at home. Thank you Kent!! I bawled the whole way home tonight, it was really hard leaving her. It's always hard but tonight even more so since I know she is so miserable. Once I got here at home I told Scott that I was really having a hard time with one of us not being with her so he's going to be taking the overnights with her. He can handle it so much better than I. He works in Springfield so it's much easier for him to stay during the week anyway. I am feeling guilty about not being here for the other kids, I miss them so much and it helps having me here in the evening to keep the routine.

The doctor ordered bloodwork today, don't have any results back. Her left leg is still swollen and she is keeping it very guarded and won't move it so he ordered an x-ray of her tibia, femur and pelvis to see if she had a fracture somehow. He read the x-ray and he didn't see anything but he still wants to wait on the radiologist's report. I noticed yesterday that Addy had some white sores on the inside of her mouth. He checked those out and said that it could be Thrush or Herpes. WHAT?? I freaked on that one, he told me not to and it's going to be watched. How that would happen is beyond me, when I am more coherent I guess I will check that out. They did a chest x-ray today and the pneumonia isn't any worse but it isn't any better either. She is still on 3/4 liter of O2 but her sats were in the upper 90s most of the day so hopefully she will get that lowered tomorrow. The doc also ordered a bolus of IV fluids and that seemed to perk her up a little bit. She is on 46mL of formula per hour 24/7 and is tolerating it well. She is having very soft stools but much improved and no vomiting. Her little bottom is raw so we are using Pull Through ointment to help clear it up. For some reason it's worse today than yesterday, I guess since she is eating 24/7 she is going more often. My mom came and brought Addy some balloons today, I think Addy likes looking at them. I liked that there was a Hershey attached for mama! Thanks Grandmama!I have a feeling we have a few more days before we even think about being discharged. Her central line is doing well and the plan is to come home with it in place for at least two weeks. I think that's a good idea, she has such a tough time with IVs and her immunity is going to be very compromised for awhile.

Notice how she doesn't have both feet up like she usually does?

A friend of mine came over yesterday and cleaned our upstairs for us! Thanks Debbie! That is such a huge help, it's so hard to keep up when I'm not constantly at the hospital let alone gone a whole weekend. I am so blessed to have such wonderful friends that are helping so much.

He head is looking better now we are fighting very dry lips!