We are HOME!!!

You mean I get to come home??? YEAH!

After spending the last 10 days in St. Johns after being home just four days from the first trip we are home! I am really praying that we are home for good now! We got home about 6:30pm and are so happy to have our family back together! Jarika is cheering in Reeds Spring so we won't be totally complete until later but this is a start! Addy came home with her central line still in place. We go to POPS (Pediatric Out-Patient Services) on Monday to have it flushed then we go to the pediatrician on Wednesday to have it removed. She is still on Flagyl for the next eight days and we are continuing breathing treatments every four hours. They also sent her home on continual feeds which is a drag, but I was told we can start trying to consolidating them this weekend if she appears to tolerate it ok. We are supposed to call the floor if she has any trouble and the doc will admit her again for observation so we have got to pray that she can handle feedings again! Fortunately she was able to stay off of O2 all of last night and today and only alarmed a couple times last night but Scott said it was because she had her leg all bent and it wasn't reading well. Once she straightened her leg it was fine. We never did find out what was wrong with her left leg, most likely a pulled muscle or somehting. Who knows, we are just very thankful that it seems to be just fine now, praise the Lord! I still haven't heard whether or not she is going to get respite care for the next week or so but Addy's nurse case manager is really working on it. I sure hope so, it will be a huge blessing. That way she will be able to stay home from daycare a full week to build up her strength and immunity again before going back. I know she must miss being around people that aren't nurses or respiratory therapists! She was very happy to be home with her brothers and she is singing herself to sleep in her own comfy bed! Thankfully Scott will able to do the same tonight too!

Playing with her favorite toys, an awesome sight!

Do I know you?

It was cute watching her move both of her feet around and around. I think she was amazed that neither one was hooked up to the Pulse Ox or had a name badge on them!