A look of desperation, please fix it Mommy!

Wouldn't you know when you go one step forward you take two steps back :(. Addy had a really rough night, as did Scott. They had to put her back on O2 her sats were dropping into the low 80s. This morning when I got there she looked horrible, just worn out. Poor Scott is too, I feel so bad that I am not staying overnight right now but I am telling myself that its for the best of our entire family and he recovers far faster than I. My shoulder is killing me. I was supposed to see my surgeon yesterday but had to cancel because I had to work. I have a feeling he's not going to be too happy with me. Anyway, I gave Addy a bath when I got there, which she hated. Her bottom is bleeding from the diarrhea. It's awful. We were able to take her back off O2 for the day, hopefully she won't need it again tonight. She is moving her leg some but she is still keeping it pretty guarded. Still have no clue what's going on there. The doc is testing her for C-Diff. Ugh, she got that last year after her colostomy take-down surgery. She probably has it, her system is so sensitive. If it is C-Diff they will start her on Flagyl so that should help. They are treating the sores in her mouth with Nystatin so hopefully that will clear up too. I tell ya, this kid doesn't do just one thing, she ends up with several!!! She pretty much was crying all day until 2 when she finally gave up and went to sleep. She slept peacefully until about 4 so that was a good nap for her. I so pray that she and Scott have a better night, I hope they both get some rest.


5 comments:
This is Joyce. John and I are sitting here reading over poor little Addy's situation. We so feel for you and know just how tough this is on all of you right now. We hate reading about the C-diff. We wish the hospitals could get a handle on this. We are thinking lots of positve thoughts for a quick recovery.
It seems like little T21's have their own little system. The seem to always take a couple steps back and one forward. Praying you get home soon and Addy feels better.
Oh my gosh ... how about a break for Miss Addy.Kills me to see her struggling and you guys too.Hoping for answers tomorrow on the leg and the possible C-diff.At least so they can start treating her sooner than later.Her little bottom needs a break.Pictures killed me.As usual.Praying for a better day tomorrow.Rest too Cammie.Prayers coming your way.
I am soo sorry--you all continue to be in my prayers!
This is just excrutiating and I'm just watching from the sidelines. I want her well!!! And your whole family home!!!
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