Addysen Update

Well Miss Addy is giving us a run for our money once again. She is now back on 1/2 liter of O2, her sats were dropping into the mid 80s, not horrible, but not good. She is happy to be reunited with her favorite toy though, oxygen tubing! She isn't as sleepy today, but extremely grouchy! She wants nothing to do with anybody! You look at her, she screams, you touch her, she screams, you say "I love you Princess" and she screams. So she has pretty much been left to have her time with her tubing.

There has been another problem arise today. Her left leg is very swollen. She hasn't had any procedures or lines there so the docs are unsure why this has happened. There is a possiblity that she may have a blood clot so they will be doing an ultrasound this evening to try to see what's going on. It's hard to tell in the picture, I couldn't get her to keep her legs together to compare, she just screamed, it wasn't worth it, but her leg is about double in size.

She is tolerating her formula well. She is only getting 30mL an hour at that same rate, so very slowly, but she is tolerating it and not vomiting it up for about the first time in 11 days. Scott and I are doing well with tag teaming the family, Cooper is having a hard time with me being gone and the unexpected stay in the hospital for the second time in the past couple of weeks, so I am home again tonight, just the boys and me. Jarika is cheering at a basketball game in Hollister (down by Branson) so I think we are going to snuggle on the couch, watch a movie and eat some popcorn. Scott is holding down the fort at St. Johns again and I am staying for the weekend. I don't see her being able to come home within the next couple of days so that is the plan for now. I know there are mothers reading this that do NOT understand how I can be away from my baby. Well, let me tell why. Scott and I have learned in the past 18 months that life with Addy can be a challenge. It is a challenge that we love and would not trade for the world. However, we can not be in more than one place at the time and we have three other children that also need their parents to love them and care for them just as Addy does. So, we have learned from the past mistake that staying 24/7 is not healthy for either of us or our kids. They need me too and I know Addy is fine with her Daddy right now. She is doing ok, just very sick, but she will get better. She could care less if I am there or not right now so that is a good thing. When she is feeling a lot better she will want me there, and yes, I will be there. I am also barely a month post-op myself and my shoulder is hurting and needs as much rest as possible. I am not far away and I can hit the road in a heartbeat, so please don't judge my family. We are a family and every member is important. So as I said, I am going to be a mommy to my two precious boys who have missed their mom these past two weeks. I'm not cleaning, doing laundry or anything else, just being a mom to the boys (and Jarika once she gets home :)