One of the things that Addy deals with due to her Down syndrome is very flexible joints and muscles. She has been wearing assistive devices in her shoes for over a year now. We are on our third set of "braces" she started with the AFO (Ankle-Foot Orthotic) then last spring she graduated to a Sure-Step. Lately she has been very defiant about wanting to bear weight on her legs when she is wearing her Sure-Steps. We noticed a couple of weeks ago that she was getting slightly red after wearing them for a while so it was time for some bigger ones. She has even stopped wanting to bear weight when she just had shoes on without the Sure-Step. So when we went a couple of weeks ago her orthotist suggested a UCB. I have no idea what that stands for but they are just inserts in to her shoe. Much less restriction than the Sure Step which makes us a little worrisome since they don't give her much support and her ankles do turn in pretty significantly when she is bearing weight. However, they do provide some support so we went on and ordered them. We got to the office and she would not even put her feet on the ground (she was wearing her shoes with her Sure Steps), We cut down her UCBs to fit her foot and she stood right up! Little stinker!! We have decided that it is definitely a sensory thing, this girl really HATES socks and shoes so less is more right now! We had to get a new pair of shoes since they are much smaller than the Sure Step and she could pull off her old ones with no problem. Aren't they adorable??? She really doesn't complain about wearing these very much so hopefully we are on to something!!!
We also once again went to the eye doc to have her glasses adjusted. She was so worn from them not fitting that her skin was so broken down above her ear it was bleeding! So she now has some silicone covers on the ear pieces, they seem to be more comfortable for her, hope so!
I just took a picture of her dresser because she is our Monkey Princess and it's just so darn cute!
4 comments:
M has the sure steps, so it's nice to see the other options for later on. I LOVE her dresser, SUPER quite!!!
Saira has the exact inserts, cricket from cascadedafo, and she seems very happy bearing weight, she only has shoes which have high tops so as to give her ankles some support. I love her little shoes, they are so pretty and that little dresser, what a true princess. Looking forward to your 31 for 21 posts!!!
Those little inserts are darling!Who would have ever thought I would one day be calling orthotics darling ... but they are!
Zoey is bearing weight a bit more ... so maybe,just maybe,one day we'll have a walker.
Have I told you how very much I love your little monkey princess?
Super cute shoes!! We did the sure steps for a year or so and now we just have an insert in Ella's shoe and she does great with them! So much easier!
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