A little update and an IEP :)

I so appreciate everyone's input about my sweet Addy boo. First off, her bottom is somewhat better after starting the antibiotic and anti-yeast medication. To address some of the suggestions and questions...We haven't used baby wipes on Addy in well over a year and a half. Addy has had a previous reaction to Pampers diapers and obviously we stopped using them. She has worn Huggies Supreme or Cuties without any problems so I don't think they could be the culprit. We gave Addy a 24 hour belly rest and she strictly had Pedialyte yesterday. She still has the diarrhea today but she seems to have more energy and is happy. She was NOT happy last night. Not sure if the electrolytes helped or what. The bright redness on her bottom is better, definitely not gone but better. She does still have areas of bleeding. We have seriously tried every diaper remedy known to man. We are currently using a mixture of  Nystatin powder, Zinc (40%), Hydrocortisone, and Triple Antibiotic ointment. We are also using the Bag Balm. We do let her "air out". Every diaper change she is dried with a hair dryer to make sure we aren't trapping in any moisture with the barrier. I am going to follow doctors orders and follow up Monday. If we are still having an issue on Tuesday when we are in St. Louis we will go by the hospital. If we are blown off, there's more than one :)



she still spends a lot of time on her belly since it hurts to walk and sit :(

Today was Addy's last day of Pre-K :) I couldn't be happier with her progress this year. She has done fantastic even with missing 21 days of school. We had her kindergarten IEP meeting yesterday and I am pleased with her plan for next year. I wish she could spend a little more time with her peers but unfortunately she really needs the therapy too! It's a double edge sword! Here is her plan right now, as we all know, IEPs are not written in stone and things can always change :) I'm just going to give a little snipet of it, no one wants to read an entire IEP!


Addy with her amazing team :) Ms. Melissa, Ms. Debbie and Ms. Deborah


Our concerns were addressed: we want her in the regular classroom as much as possible. We have requested that we are given her schedule prior to school starting (as much as possible, I know not everyone schedules before school) so we know what she may be missing in the regular classroom, we do not want her assigned to just one paraprofessional, we don't want her dependent on an adult so we have requested that the para just to shadow Addy at this time and give her minimal assistance, we want the para to keep her on task, guide with hand writing etc. We want Addy's work to be hers :)

Addy's special education services will include the following:
30 minutes per day in the Resource Room for task completion
30 minutes per week of Adapted Physical Education

Related Services:
Occupational Therapy 60 minutes per week
Physical Therapy 90 minutes per week
Language Therapy 75 minutes per week
Speech Therapy 75 minutes per week

Soo... Addy will 77% of her week with her typical peers in her kindergarten classroom (she will have a para with her, but like I stated, we want them just to assist if necessary).  At this time we have also requested that Addy not participate in Regular PE and Art. PE just isn't safe for her, she just isn't stable enough (she's already been knocked down) . Art isn't appropriate either, she just doesn't have the motor skills. So hopefully she will be able to go to get her Resource minutes at that time or a therapy. The problem with that is, our special classes are on a five day rotation and they don't always stay on the same days so that may make scheduling a little messy since she will be participating in Library, Music and Computer Lab. I hate scheduling, so glad I don't have to figure out Addy's!

The boys have their last day of school tomorrow. They will both be in Junior High next year :) So bizarre to think that is even possible!