Killing Me!

 Addy has been fighting the runny hiney issue for almost two weeks! She appeared better last Tuesday but then went downhill again on Wednesday. I finally decided to take her to the doctor on Monday. Her doctor is out (naturally), so we saw the doctor on call. I liked her but I had to remind her six times that Addy is fed via g-tube and I can't modify her diet! (BTW her formula arrived on time this month :)) Anyway, a stool sample was taken and she told me she would test her for everything and I would get a call in 12-24 hours with the results. I didn't hear anything yesterday so I called first thing this morning. I did find out that the only test back was Salmonella and another bacteria and they were negative.  I asked the nurse to call in a refill on Addy's "butt magic" since her entire diaper area is bleeding. The doctor did tell me to add triple antirbiotic ointment to it too since she has open wounds :(  I'm not kidding, this poor child is MISERABLE! She is even beginning to complain of pain which she has NEVER done before!
 
I hate having to change her diaper because she says "no no no" and then says "sorry, sorry" and grabs the sides of her changing table to brace herself :(  A little bit later the doctor called me and said that she had the rest of the results and everything was negative. I was pretty surprised. I thought perhaps she had Rotavirus so I asked her "Even Rotavirus?" After a pause she said "we didn't test that." Are you kidding me????? Ugh, she told me she would call the lab to see if she could have them run the test with what they had. Within five minutes she called me back to let me know that not only did Roto not get tested neither did C-Diff since the sample wasn't in the correct specimen container! I don't think it's C-Diff but I would like to rule it out, SOMETHING is wrong! Sooo... I have a new sample to take in tomorrow so they can run those tests too. Not sure when I'll be able to do this since this time of year is more than crazy and I have three IEP meetings tomorrow. I would have a chance after school before a meeting in Springfield but that means it will be even longer before we find out what is going on!