Ugh

Feeding therapy is just not going the way I was really hoping it would. Addy made soo much progress in the beginning, her therapist and I were both really pleased! The last couple of weeks I've noticed that Addy is really just sort of going through the motions with eating. More is coming out than going in. She seems to have regressed in this area some. So Kelly (her therapist) had mentioned that the next time I take Addy to the doc to talk about changing tube feedings around and adding an appetite stimulant to see if it makes any difference. We saw her new pediatrician on Monday and she had no problem prescribing it to see if it does anything.It will take a few days before it kicks in so I guess we'll just wait. I just gave her her first dose this morning. Yesterday at tx Kelly decided to use a syringe to see if we can get the bolus farther back to help decrease some of Addy's tongue thrusting. It helped and Addy was none to pleased about it. She still spit a lot out but she did seem to actually swallow some.

Today I pulled out the syringe at lunch. You can see Addy's reaction.

She kept asking for milk and pulling her shirt up. We are really trying to stress to her that we eat with our mouths, it's hard for her to understand. I don't think she feels hunger. When I hear her belly rumbling I always say things like "you're hungry", "you need to eat" etc. However, it's usually around the time for a tube feeding so naturally that would be her thinking! Sooo, we have a long road ahead of us. I am really hopeful that we eventually get off of this feeding tube!

There's a tiny hint of orange, maybe a mL or two actually got swallowed!

This is what I found when I cleaned out Cooper's drawer in the bathroom. Apparently he never throws his toothbrushes away!