(This is just a cute pic of Addy adoring herself :))Last week while combing Addy's hair after a bath it was more tangled than usual. I put on her detangler and combed her hair, no big deal. I also noticed that some hair came out. Not too concerning, we all lose hair everyday. I just hadn't noticed her hair coming out before.
This weekend Scott was holding Addy and commented that her hair needed to be cut, it was getting a little scraggly (not sure that's a word). I told him that I planned on taking her this week, it is really long. I want to donate it but then it would be super short and I'm not big on super short on Addy, it looks really cute long. So I planned on calling tomorrow for a haircut.
We had a special visitor today so I didn't want to go for a hair cut today anyway!!! Laura really wanted Addy to look at the camera! Too bad Laura didn't look at the same time!
(this pic was taken right before I put her down for nap, you can sort of see the difference)After Addy's nap she had this HUGE rat on her hair right in front of where her ponytail was. Two of my friends were here with me and saw me trying to get it out. It was pretty comical, I couldn't figure out how she managed to knot it this way. It has NEVER had a "rats nest" in it before! As I was working on it some hair was coming out. More than I've seen. Laura's mom told me that Laura's hair would come out from time to time and not worry about it. She said Laura used to twist her hair and perhaps that's what Addy had done ( I haven't seen her do this, however, she was in her bed for a nap when this happened) She and Laura left and I kept working on the rats nest. As I was working I picked up the "nest" to move it and it completely came off of her head! The entire amount! She now has a bald spot! I'm trying not to freak out. She did start her new med just a couple of weeks ago but I can find no information about hair loss being a side effect. Not on the info from the pharmacy or online.
So tomorrow I'm going to call the doctor to see if she wants to be seen. This amount of hair loss at one time does not seem normal to me at all. I'm going to take her to the beauty shop to have them look at her hair too. The consistency seems different to me, it didn't used to tangle like this. I don't think this is Alopecia but I don't know! Anyone else seen this?
8 comments:
Take a deep breath and I will take one for you as well.
Wish had some info or advice but the for now, the breathing, that is all I have for you my friend.Prayers for your anxious heart as well.
Will call and check in tomorrow.
Wish I had some advice, but I've got nothing! I hope the doctor has some good news for you tomorrow! I'll be thinking of you both!
Never saw this, glad she's being looked at. I've lost hair like that before, almost like I was shedding, but I've never seen it in a child.
Keep us posted, ok???
If the medication doesn't list hair loss as a potential side effect, I would investigate more (via pharmacy or pediatrician) to see if it in anyway compromises metabolism of different nutrients that she would need to supplement for. I know that trisomy of ANY chromosome immediately effects how nutrients are metabolized that support hair, skin and nail growth. It may not show up in effects in a population that metabolizes these nutrients differently than someone with a trisomy...Jace's hair doesn't fall out, but his fingernails do. And I mean FROM THE NAIL BED. They just drop out. Oh, the barf I've had to swallow back...
Praying there is a simple explanation - like meds - that can be corrected easily.
Not to freak you out more - but there is a little boy in Charlie's class with Ds who has lost his hair this past year. I have never asked his mom what was going on -- but will reach out to her to see if she has any advice.
Oh dear that is a lot of hair. Praying you get a good answer from the dr or pharmacist!
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