Day 17 of 31

Addy and I just got back from the Pumpkin Patch. Did I take my camera? NO I forgot it! So these are pix once we got home, she is one tired little pumpkin! My friends took tons of pictures of her so hopefully I can upload them next week. Her shirt says "Mommy's Little Ghoul", pretty appropriate for a speech pathologist's child dontcha think???

Just got two pix so I just added them on!

Day 16 of 31

I know this pick is blurry but you get the idea, Addy was pulling Avery's hair. What are little sisters for right?
Avery was doing his reading homework and thought he'd read to Addy while she was in the kitchen "cooking" with me. How cute are they???
It finally felt like fall around here! I put Addy in a long sleeved outfit and boy was she not happy! I spent all afternoon getting her sleeves out of her mouth! She kept pulling on them and screaming, I don't think she was very happy about them! She's just gonna have to get used to it though, I'm thinking this weather may actually stay this time yeah!

Day 15 of 31

Addy playing with the "Roller Coaster" while waiting at the doctor. I think she really enjoyed it!

Addy went in for her cardiology appointment today. He wanted to recheck her after she had been off of her Lasix and Viagra for three weeks. Her echo cardiogram today was NORMAL! Woo Hoo! There was no evidence of any Pulmonary Hypertension (which is not a surprise) and the hole in her heart is so tiny that it was impossible to measure the leakage now! That is so great! He did ask me what was going on with Addy touching her neck. I told him that we have no idea and she does it all of the time. He said go ahead and check with her pediatrician. I will of course. Then he said "Well Down syndrome kids are wierd.They do strange stuff all of the time and you never can predict them." AHHH! I know he didn't mean if offensively but ugh!
Her home health nurse called was trying to schedule her Synagis vaccines and wanted me to check with her cardiologist about whether or not she needed them this season. He said there is no reason for them this year from a cardiac standpoint so I'm supposed to contact her pulmonogist to see if he wants her to have them. I hate her having to get shots but I know I hate the hospital more. So I guess I'll just wait for pulmonogist to get back with me to see if we need to schedule the injections.

Day 14 of 31

You know how most people will say that everyone with Down syndrome is always happy? Well I have to admit that is pretty much true with Miss Addysen. She is such a good natured child. She is usually extremely smilely and happy. Don't get me wrong she gets very upset when her little bottom is raw from antibiotics (who wouldn't though right?) and she doesn't like being told "no". She does make the cutest little pouty face though! She doesn't have to be told much (yet) but when you do tell her not to grab her nebulizer tube she will give you the saddest little face. Her bottom lip is able to come out very far! So to go along with the whole 31 for 21 thing and trying to blog about DS I just thought I would say that the myth that all are happy all of the time... well I'll say that with my daughter it is more than 95% of the time!

6ht Picture Folder

From the wonderful blog about Miss Kayla (Big Blueberry Eyes), I thought I would play along. Go to your sixth picture folder and post the sixth picture. Here's what you get!


This is a picture of Avery the day he was born. Isn't he beautiful!?!?! This was April 20, 2001.

Day 13 of 31

I went to my physical therapy evaluation today. Most likely I have torn my Rotator Cuff. Ugh. We are still going to do six therapy sessions to see if it improves. But most likely I will have to go for an MRI to either rule out the tear or to see what sort of treatment I will need. If it's torn most likely I'll have to have surgery. Not that I want that, but I am really tired of my shoulder making me miserable! I guess I'll know in a few weeks what's going to happen.

I just took some pix of Addy with Jarika. She stole Jarika's spoon from her which was a great toy and then was pretty pouty when Jarika wouldn't let her have her cell phone at all times! It was too cute.

It looks like she's trying to feed the dog, Bella!

Day 12 of 31

Addy is so funny, she usually goes to sleep very easily. However, there are those times when she is convinced that she's going to miss something. So we pull out Ole Faithful. Whenever she won't go to sleep on her own or if we rock her we put her in her Jumperoo and within five minutes she is out like a light. She looks so sweet, but so uncomfortable!