Addy playing with the "Roller Coaster" while waiting at the doctor. I think she really enjoyed it!
Addy went in for her cardiology appointment today. He wanted to recheck her after she had been off of her Lasix and Viagra for three weeks. Her echo cardiogram today was NORMAL! Woo Hoo! There was no evidence of any Pulmonary Hypertension (which is not a surprise) and the hole in her heart is so tiny that it was impossible to measure the leakage now! That is so great! He did ask me what was going on with Addy touching her neck. I told him that we have no idea and she does it all of the time. He said go ahead and check with her pediatrician. I will of course. Then he said "Well Down syndrome kids are wierd.They do strange stuff all of the time and you never can predict them." AHHH! I know he didn't mean if offensively but ugh!
Her home health nurse called was trying to schedule her Synagis vaccines and wanted me to check with her cardiologist about whether or not she needed them this season. He said there is no reason for them this year from a cardiac standpoint so I'm supposed to contact her pulmonogist to see if he wants her to have them. I hate her having to get shots but I know I hate the hospital more. So I guess I'll just wait for pulmonogist to get back with me to see if we need to schedule the injections.
2 comments:
Xander does the same thing with his neck. He pushes on it....really hard sometimes and it looks like it should hurt. I asked the pediatrician about it and she said it may be a comfort thing or jusdt a habit. Anyway, just wanted to let you know that Addy's not the only one who does that!
Addy is so cute.
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