Missing

I was checking out the newly posted pix from Camp Galilee on Facebook just a bit ago. Both of my boys are there and we don't pick them up until Saturday, they've been there since Monday. I finally saw a pic of one of my sweet boys and now I'm blubbering like a baby.There's my boy reading the Bible with his friend, Landon. What a beautiful picture!

Good Walking :)

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Swimming party

We went to a swimming birthday party for a good friend of ours. :)

You have seen pictures of Miss Laura before :) I have known Laura since she was about a year old. She is precious! She is also a big reason we have our Addy :) Laura is turning 16 next week and she's been planning this birthday party forever! So glad we were invited, we had a lot of fun! Happy Sweet 16 Laura!

Ugh

Feeding therapy is just not going the way I was really hoping it would. Addy made soo much progress in the beginning, her therapist and I were both really pleased! The last couple of weeks I've noticed that Addy is really just sort of going through the motions with eating. More is coming out than going in. She seems to have regressed in this area some. So Kelly (her therapist) had mentioned that the next time I take Addy to the doc to talk about changing tube feedings around and adding an appetite stimulant to see if it makes any difference. We saw her new pediatrician on Monday and she had no problem prescribing it to see if it does anything.It will take a few days before it kicks in so I guess we'll just wait. I just gave her her first dose this morning. Yesterday at tx Kelly decided to use a syringe to see if we can get the bolus farther back to help decrease some of Addy's tongue thrusting. It helped and Addy was none to pleased about it. She still spit a lot out but she did seem to actually swallow some.

Today I pulled out the syringe at lunch. You can see Addy's reaction.

She kept asking for milk and pulling her shirt up. We are really trying to stress to her that we eat with our mouths, it's hard for her to understand. I don't think she feels hunger. When I hear her belly rumbling I always say things like "you're hungry", "you need to eat" etc. However, it's usually around the time for a tube feeding so naturally that would be her thinking! Sooo, we have a long road ahead of us. I am really hopeful that we eventually get off of this feeding tube!

There's a tiny hint of orange, maybe a mL or two actually got swallowed!

This is what I found when I cleaned out Cooper's drawer in the bathroom. Apparently he never throws his toothbrushes away!

I Love Her!

I was getting ready to Addy to the doctor this morning. She had some tummy issues over the weekend so I thought we better go on in. This is what she did while I got ready:




Little stinker! I guess she didn't like the hair accessories I had already put in her hair, she managed to dump quite a few out onto the floor!

We got to see Addy's new pediatrician today. Her pediatrician retired at the end of June :( I loved him, he saved her! Remember the whole starving issues???? Anyway, I am very pleased that I really like his replacement! She has a lot of experience with critical care so that's always a plus!!! I just took a stool sample with me this morning so she sent that off to the lab. I'll hear tomorrow if there's anything brewing. It's probably just a virus but with Addy's significant history of C-Diff we never risk it! Since she has had so many diapers over the weekend her bottom is pretty raw. Usually docs just tell me the usual: don't use baby wipes (we don't), keep a barrier on her (we do) and change her frequently (we do that too). But today, Dr. Roe prescribed what she calls "Butt Magic" :) it's Nystatin powder, zinc oxide and hydrocortisone. Cool! At least I thought so till I picked it up, $22 and insurance wont' cover it! I think I could have mixed it up for far less than that! Hopefully it will help. If it doesn't she wants the mix made with stoma powder instead. We have stoma powder on hand so we may make up our own!

Looking forward to a quiet week, it's unbelieveably hot and Addy is miserable the second we go outside :( Hoping she improves by Friday, her birth parents are coming for a visit and we have a pool party for a special someone :)

Quick Trip to KC

The three princesses :) Addy was standing in a chair and was refusing glasses, showing her stinker side!

The kids and I took a quick trip up to Kansas City so we could meet up with the Garcias as they traveled their way to Colorado Springs :) I felt so bad for them, moving is so exhausting no matter how far you go and they are going across states with 5 kids!

When we got to the hotel the kids played on the bed (hotel tradition) and then we went to swim for a while. I got no good pix of the swimming but some cute ones of Jake and Addy wrestling! She absolutely loves rough housing with him!



When Frank and Renee arrived we went to eat at Jack Stack BBQ. It was really good! We even had a room to ourselves :) Renee said that they saw all of the kids and thought keeping us apart would be a good idea :) The kids were so good. Poor Kennedy was not feeling well at all :( I felt so sorry for her! Once she ate she felt better but she sure was pitiful for awhile! I wish we could have visited longer but I know how tired they must have been!

This morning we slept in and were pretty lazy getting moving. I figured Renee was well on her way to Colorado but once we got to the elevator she peeked out of her room. They had had a rough night (poor Keeghan was up all night with leg pains) and unfortunately Frank and Kassidy were at the emergency vet. Poor Kass' guinea pig was sick and ended up not making it :( I feel so bad for her, she is a very sweet young lady. I hate that she lost her pet and is so sad :( So the Garcias got out much later than they planned, keep them in your prayers as they make it to their new home, what a rough trip for them!

I know this is what you really want, pix :)

The kids being goofy :)

Jake and Kellsey :)

Kassidy and Addy. Addy loved her!

The whole gang :)

Keeghan, Addy and Frank. Keeghan was seriously cracking me up! There is a reason I love working with 4 year olds!

Thanks so much for the visit Garcias, enjoy your new home in Colorado!

Happy 4th of July!

We went to our cabin on Saturday for a few hours. We haven't been able to go down due to all of the flooding so it was nice to actually make it to our dock! Jarika and some friends from Joplin were down and had been swimming all day and were ready to go tubing. I think Scott had a little too much fun throwing them off of the tube! Addy even swam with me for awhile and seemed to like it :) that is until a huge wave came and she got a mouthful of water! YUCK! We came home and spent the entire drive coming home in a major thunderstorm! Not fun!

Yesterday we went to our annual 4th of July parade here in Marshfield. It is the biggest parade west of the Mississippi! It was sooo hot! The temp was only about 84 but the heat index was killing us. Scott had to take Addy to the car for a bit to cool down. We toured the square and then came home to get ready to go to my brother's. I made fruit salsa with cinnamon chips and white chocolate covered strawberries with blue sprinkles :) We had a really good time, food was great and spending time with our whole family is always fun!The Grand Marshals were Tony, Shaelea and Shaydon DeCamp and Leona Jett (Leasha's mom) I know their mama was smiling from above:) We all miss you Leasha!

Addy was getting our friend, Boston's belly, it was too stinkin cute!

Cooper wore Uncle Kent's ear protection during the fireworks, the noises were really getting to him. Addy had a complete meltdown and spent the majority of the time inside! We did convince her to clap some after they went off but she was sooo not impressed! Some neighbors had set off those floating lanterns and I even tried to convince her they were for the lost princess, Rapunzel, but she wasn't buying it!