Taking Things for Granted

I'm not really a person that takes things for granted. I am so appreciative of all of the things that we have. However, there are times that I catch myself taking things for granted. A couple of months ago we switched Addy's medical supply company to one that provides everything we need in one place so I'm not calling all over to get the things she needs. I have been extremely pleased with them :) They are a smaller company in Springfield and one of the ladies I deal with has a son on a g-tube so she "gets it" :)

When Addy and I were in California visiting our besties (aka, Heather and Zoey) I was mixing up Addy's formula for the day of our travel home. I somehow miscalculated or mis/mixed and didn't have quite enough for her entire day. I knew that I had a can in my van in Kansas City so I knew we'd have enough to get us through the night but it still stressed me out a little! Fortunately I can water down pureed foods and put them through her tube in a pinch.

Addy's formula is supposed to be automatically billed on the 25th which means it should ship within a couple of days. The place that Addy's formula is coming from is somewhere in New York. It arrives in Springfield and it is sent FedEx to me. Last month it arrived on the 6th which was ok because I still had a can. A can lasts a few days (at the cost of about $70/can). Last Thursday night I realized that we only had one can left after I mixed her Friday feeds and half of Saturday. Just enough to get us through until Tuesday. I called the office on Friday to see if it had been shipped yet. Unfortunately they were closed for Good Friday. I left a message with the service that it was urgent that I hear back something on Monday. Monday morning I called but forgot they didn't open until 10. I got super busy at work and didn't get a chance to call back but about noon I received a call from the man that handles the enteral supplies. He said that Addy's formula was ordered on March 23rd and arrived at their warehouse on Sunday night! He said that it was out for shipment :) Thank goodness!! Well, yesterday at 4 o'clock when I got home we still didn't have any supplies!!! I called and got a hold of a man that I hadn't dealt with before but he was the best! He went looking and searching to see what the deal was. I told him that I would come to Springfield and get it if for some reason it hadn't been shipped, Addy only had enough formula for one more feeding. However, they only keep Boost and Pediasure on sight :( Addy is highly allergic to all milk products so that was definitely a no go! Fortunately after about 45 minutes of searching he was able to track down FedEx and they called to let me know that Addy's shipment had an ETA of 12 minutes! Sure enough just 12 minutes later FedEx arrived with our shipment! I was soo thankful! I really appreciated everyone working so hard to make sure that my girl would have her food!!!

It was one of those moments when I realized how much I take these medical supply companies and delivery trucks for granted. It's not like I can run out to the store and pick up something for Addy to take. Once we ran out and thought we could supplement with her old Prosobee formula to get us at least a few feedings and she had a horrible reaction to it. She'd taken it for years so it surprised everyone. Addy's GI system is apparently a mess and I will never take ELECARE for granted again. I just wish we could somehow get enough that we would have a little extra at the end of the month for emergencies, however, insurance companies frown upon that!!!

So this was a just a scary little reminder to appreciate all of the blessings we have when it comes to our special kids!