Well, I got word today from Addy's pulmonologist that we can now start weening Addy off of her O2 during the day! We will start at 1-2 hrs a few times a day then go up to two four hour stretches! Once she can do that consistently without falling her sats below 90 we can try to nap without it too! Yeah! I had it completely off of her face for awhile today and forgot to take pix! I'll get some in a couple of days after a bath so her face isn't so raw from the stickies! Also we go to the ENT tomorrow to schedule her T&A surgery and bronchoscopy. They are hoping this will help with O2 levels at night and determine whether or not she has Tracheomalacia. Not that I want her to have another surgery but if it will help her I'm ready now! I know the nurses at the hospital wouldn't mind a visit either!
Jarika made cheerleading again! She's so pumped! Congrats sis!
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