Day 2 Inpatient

Addy had a rough night a pretty good morning and very rough afternoon. From about noon on her heart rate was high and she was cranky and just wanted to be held in one position. For hours! My left arm is still numb and my right is beginning to get it's feeling back into it!

Whenever I moved her a tiny bit she would start crying and crying :( She will not close her mouth since getting her cannula and her mouth is soo soo dry. I tried several times to give her a drink and that was an absolute no go.
She also has her IV on her right arm and she is keeping her head tilted to the right and won't move it, I think she thinks she can't move. She won't move her right hand at all. (She's like that when we put a coat on her too :)

She spiked a fever and wasn't the same since :( I am now home with the boys and I'll go to work tomorrow, Scott is with her tonight and tomorrow. The doctor thought this morning that there was a chance she would go home tomorrow if she was able to get off of O2 today but when they tried to take it off she desated. Her cannula came off while she was sleeping and almost instantly went to 88 so things aren't looking very good for release tomorrow. Praying for Thursday. Please cover Addy in prayer, I so appreciate it!

Pneumonia

I hate pneumonia! Addy has it in both lungs. It hit hard and fast! She started a tiny cough Friday night. Seemed fine Saturday morning with just a few episodes of coughing. When she woke up from her nap she had a temp of 102 which is really high for her. She seemed ok though! Yesterday she ran a temp around 100-101 and still just a little cough. This morning she had a temp of 99.6 and seemed very tired. Her pulse ox was 79, then 84 then 87. I gave her a breathing treatment and it went to 90. Still not good. So I took her to the doctor. Her ped is on a cruise but we saw the nurse practioner and I loved her! Addy really wasn't acting too bad, just puffy eyes and tired. She checked her out and said she didn't hear anything in her lungs but took her pulse ox and it was 89. They gave her another breathing treatment and it went to 91. They needed it to be above 93 to let me take her home :( The doc on call ordered a chest x-ray and had me take her home since it was almost lunchtime. So we got home and waited for the call. Sure enough Addy had pneumonia in both lungs but they felt it was viral, however, wanted to start antibiotics and more nebs. I was to monitor her all afternoon and let them know if she fell lower in her sats or acted worse. After her nap her pulse ox was 85 :( So that got us a one way ticket to admission. So here we are in the hospital :( Her x-ray from when we got here was worse than the one from the morning. So she is on IV Rocephin and continuing oral (lol g-tube) Zithromax and one other IV antibiotic. Her sats are now okay on 1 liter of oxygen. Her heart rate continues to climb at times so that's a little worrisome but not too bad. They took labs and I'll find out soon if they show anything. Prayers appreciated for my baby girl!

Fevers are frustrating!

Addy woke up after her nap yesterday with a fever of 102 and it hasn't been under 99 since. She has a mild cough but no other symptoms. She's acting pretty good when her fever is below 100. I don't think she has an ear infection but I can never be sure with her. If she's spikes up again tomorrow it looks like we're heading to the pediatrician. Thankful that I actually ahve tomorrow off for the first time in about 15 years!

She's trying so hard to dress herself, she cracks me up!

Twenty-One Cakes!

(Addy hanging out in the comfy chairs at Twenty-One Cakes)

If you've read my blog for awhile then you have seen the amazing cakes that my friend, Annie makes! Not only are they amazing to look at, they are beyond delicious! She is opening her new bakery this weekend, Twenty-One Cakes :) We got to go tonight for a special for friends and family! Scott and the boys had amazing chocolate cake and I had two mini cupcakes, one chocolate fudge and the other was oreo! Soo yummy! Too bad my crazy girl doesn't eat cake! She has no idea what she's missing! If you are local at all, tomorrow is Annie's grand opening in Nixa, you MUST go! 10% of her proceeds benefit the Down Syndrome Group of the Ozarks as well!

So Proud!

It was grade card day! I'll give the run down if you can't read the pix :)

Communication Arts/Reading Readiness
The student can tell the name of the upper case and lower case letters in random order.
2nd Quarter:
Addy identified all upper case letters with the exception of Q and S (she does know S however!)
She identified the following lower case: b, e, i, j, o, r, s, t, v, w, x, and z.

The student can recite the entire alphabet correctly.
YES
The student can identify their name from other names that begin with different letters.
YES
The student can identify their name from 3 other names that begin with the same letter.
NO

Mathematics/Science Readiness
The student can count out loud without error.
Addy counts to 15 consistently

The student can count objects without an error.
She counted objects to 6. We can usually get her to 8 but on assessment day she went to six :)

The student can identify the following colors by naming.
Addy named green, blue, purple and brown. However, her teacher knows full well that Addy knows all of her colors ;)



The student can sort objects by colors. (goal 4 colors)
Addy is sorting 2 colors with 80% accuracy.

The student can identify the following shapes by matching.
Addy matches square, triangle, circle and rectangle.
The student can sort objects by multiple shapes.
NO
The student can position an object in front, above, behind, above and below.
NO, Addy will put an object "on" another

Motor Development
The student can hold a pencil correctly.
Sometimes, uses both hands (she truly prefers the left)
The student can color in the lines.
NO
The student uses scissors effectively.
EMERGING, she snips ;)

Social/Emotional Development
B=Beginning D=Developing M=Mastered
Respects Classroom and school rules: D
Participates in group activities: D
Shows self-confidence:D
Takes care of one's needs: B
Gets along with others: D
Copes with frustrations and failures: D
Knows first and last name :D knows her first name only

Work Habits
Listens attentively: D
Follows simple directions: D
Has good clean up habits: B
Stays on task: B

I am very pleased with Addy's progress! She is doing so well, what an amazing little girl she is :) She is blessed to have such a wonderful support system at school. Everyone loves and adores her and encourage her so much! All of her teachers are wonderful to help encourage things we want at home to carryover at school. We are hitting the potty training big time and she has done phenomenol! She didn't have any accidents at school today :) Hoping in a few weeks we will brave the no pull-ups!

Feeding

If your child doesn't have feeding issues you are soo blessed! When we adopted Addy she had so many health issues that I really didn't worry too much about the fact that she had a feeding tube. I knew that someday she wouldn't have they oxygen, colostomies, pulmonary hypertension, and obstructive sleep apnea. The tube was another story. I knew that it would be a long time thing. I was seriously hoping that she wouldn't have a g-tube by the time she was four. That didn't happen and I knew then that hoping for age 5 was a dream. Addy started feeding therapy in November of 2010 and has made tremendous progress. I wanted Addy to accomplish three things before kindergarten. I wanted her to walk :) she's doing that! I wanted her potty trained, (see my 365 blog for that info) and I wanted her to not have to have a bolus feeding during school.

I'm not sure if that's going to happen but she is making so much progress. She is presented food with each tube feeding. She doesn't eat very much but at least now we are putting the spoon and food in our mouth without freaking out. She is tolerating Stage 3 foods pretty well too. She does freak out when a big chunk actually gets swallowed though. She doesn't mind it in her on her lips or in her mouth but does NOT like to swallow it!

Addy is really trying to be more independent. She really wants to feed herself but she just doesn't have the wrist rotation to use her spoon too well. I finally got in some curved spoons I ordered her. I had looked all over Springfield for them and couldn't find any so I went on and ordered them just after Thanksgiving and they just arrived this week! She is LOVING it! She does much better with her left hand so that's the only spoon I'm presenting her right now. The actual spoon is a little big for her but she is using it so I'm not complaining! She did great with lunch today, I can't wait to see what she's able to do just before school starts!

First Night

Addy's first night in her "big girl" bed :) She never got up but she's not quite in her bed!