Saturday, December 13, 2008

Cooper is amazing


I don't post much about Cooper since truly, he is the easiest child we have! When Cooper was a few months old I began noticing some sensory concerns with him. It took him forever to take a bottle without gagging and throwing up and he hated having things on his hands. His eye contact was okay but not the greatest. He had really good gross motor skills, but was very clumsy. He never waved "bye bye" as a baby. When he was 18 months old he had lost the six words that he had been using. He was finally evaluated and was placed in Speech therapy and occupational therapy. He was diagnosed with Pervasive Developmental Disorder-Not Otherwise Specified. He literally would stand and stare at a doorknob for hours just humming away. If we even thought of turning Teletubbies off of the TV be ready of an outburst. Things were hard but we made it through. We always raised Cooper just like any other child. We taught him early that things were not always going to be his way and routines do change. He hated it. I mean HATED it, but you know what, now I can spring any ole change on him and he's okay! Granted that's just in the last year or so, but still, wow! At the age of 4 he was given the diagnosis of Asperger's Syndrome. This child began reading at the age of two and was doing math facts at the age of three. He had so much trouble with changes of any kind. Especially routine. If I told him we were going to pick Jarika up at gymnastics and I took an alternate route, man I was in trouble! He would scream and cry and bang the windows of the car. It was heartbreaking. I have mentioned that Cooper auditioned to be a part of the Junior Jays Singers for 4-6 graders. Over 170 tried out and 80 kids made it. It truly is amazing to see this child perform like this! His past teachers are so amazed by him. His librarian from the age of 3-7 stopped me the other day. She is one of the leaders of the Junior Jays and she said "Cammie, if you would have told me between the ages of 3-7 that Cooper would be a Junior Jay, I would have said "NO WAY!" I can't get over him! He is doing so great!". I am so proud of this child of mine. God truly knew what he was doing when he chose Cooper for our family. Don't get me wrong, there are many times when I think to myself, "Why can't he just deal with this, or get over this." I feel guilty when I have those feelings because he truly can't help it. Cooper is nine years old and still cannot tie his shoes, play sports as well as he'd like to (but he does it), he has trouble with unstructued activities, recess is the worst, but you know, he is mine and he is amazing and has made so much progress dealing with what he faces everyday as a child with Autism. Enjoy the pix of his latest concert, the lighting was horrible but the performance was great!

Wednesday, December 10, 2008

How do some do it?

Scott and I worked diligently at getting the kids pictures done for Christmas cards. Why is it when we get out a camera my boys turn into Frankenstein and Addy does all she can to have the worst look on her face, or the cutest smile facing away from the camera??? After many attempts we decided that the pic now at the top of my blog was the best of all four. I think we're gonna have to go to the Reed's house next year. Their family pic has 11 children and two parents that look perfect! Christine how did you do it?????







This one, well we were trying a little too hard huh?



Avery looks scared in this one!

This one Avery is eyeless.




And last but not least, the pic of at least one child picking his nose!


Tuesday, December 9, 2008

Saw the surgeon

Well I got to see the surgeon today. Crazy as it seems I was really hoping I would be scheduling a shoulder repair today. Not so lucky. I found out that I have a tumor on my humerus bone called a Chrondoblastoma. This is a benign tumor so thank the Lord for that. I do have to have a bone scan on the 22nd to confirm the diagnosis. So no surgery to repair my rotator cuff that is torn in two places for now, we have to make sure this isn't cancer before they start cutting on me. The doc gave me more cortisone shots in my shoulder. These are VERY painful! I left so discouraged I just cried. I want the pain to go away so badly and now it just hurts worse and the plan is to focus on the tumor that is not causing me pain or harmful at this point! UGH!

Random Kid Updates:
Jarika is on a new medication that is wiping her out! She is so tired right now, it's concerning. Please pray for the doctors to find the right dose and medication for her!

Cooper sang at Breakfast with Santa on Saturday and the Junior Jays are so awesome! I love seeing him perform! One of his leaders, who happens to be our former librarian at school, stopped me the other day and said that if someone would have told her when Cooper was between the ages of 3-7 she NEVER would have believed that this child would EVER sing and perform the way he does! He has come so far! What's a little autism anyway???

Avery was really bummed on Friday. He had/got to take the challenge spelling word list and he forgot to study. The words were homophones so he missed his first spelling word in 2nd grade. I am so proud of him! He decided since he missed one his new goal will to be to only miss ONE spelling word in 2nd grade, isn't he awesome??

Addy said "Baby" the other day!! I can't believe I haven't blogged about that yet! I don't have it on video yet since that extra chromosome seems to impact her ability to perform on command, crazy huh? Also, we had to fire her babysitter on Friday. Things were going from bad to worse and it was time. Fortunately I found someone to keep her! She isn't staying here at home anymore but she is with a wonderful person and getting to play with another little boy too, who she is loving!

I'm gonna continue to watch our roads freeze and wait for a call to cancel school tomorrow! I would love to have a day at home to just hang with the kiddos, watch Christmas movies and drink hot chocolate. Anyone want to join me?

Sunday, December 7, 2008

DSGO Christmas Party/Christmas meaning

Last night our family headed to Springfield for our Christmas Party with our local Down Syndrome Group of the Ozarks. We had a such a great time! We sat with some good friends of ours, who have a son who is 18, T, with DS. I was his speech therapist for many years and I love him to pieces! At the table next to us sat some more families from Marshfield. One family who I have known about 13 years who we know well was there with their daughter too. Their daughter, L, is one of the reasons we chose to adopt a child with DS. We love these kids with all of our hearts! Addy thoroughly enjoyed watching all of the kids and she especially hit it off with the cutest little guy ever! R is 4-5 years old and was so funny! He and Addy played and played, it was too cute! We had a delicious meal and then all of the kids sat on Santa's lap. Each child got a gift too! Addy got a Leap Frog farm toy that you match the front and back to make the animal sound and it says the color. She has enjoyed making it sing! The pig is her favorite sound though! The boys each got a really nice set of Hot Wheels, you can never go wrong giving little boys cars! Jarika wasn't left out either! She received a free Value Meal coupon from McDonald's and a free Concrete from Andy's Frozen Custard. Andy's is her favorite! She was excited too. I am so glad that we got to spend that time as a family!
L and T :)


Addy and R! Is he not the cutest thing you've ever seen???

Addy's first visit with Santa!





This morning at church was awesome. Our praise team sang many beautiful songs about Christmas. They were moving. It really makes you think about the reason for the season. I have been bummed because this year money has been really tight and we were expecting a significant amount of money to show up and not only did I find out that there's very little chance that it's going to arrive before Christmas, but it's going to be about 75% less than what we expected. We were going to use this money for our Christmas but our plans are going to have to change. But this morning I once again realized that I have got to stop thinking about what we don't have and give thanks for what we do. I have a wonderful husband who I love more everyday, I have four children that are such blessings. My kids are healthy (relatively), they are home, they aren't in the hospital like we were facing last year, they have clothes on their backs, a home and plenty of love and attention. They may not have as many things under the tree this year, but they have the love of a family.
In my church bulletin this morning was a paragraph about the Christmas tree: The fir tree has a long association with Christianity, it began in Germany almost 1,000 years ago when St. Boniface, who converted the German people to Christianity, was said to have come across a group of pagans worshiping an oak tree. In anger, St. Boniface is said to have cut down the oak tree and to his amazement a young fir tree sprung up from the roots of the oak tree. St Boniface took this as a sign of the Christian faith. But it was not until the 16th century that fir trees were brought indoors at Christmas time. The evergreen represents the eternal life which we receive in Jesus. The point of the tree points to heaven to remind us that Jesus was God's gift of love and grace to all people.
So as I put up our sad little tree this year, (our beautiful pre-lit one was destroyed in our spring floot), I remember that there is a reason for this beautiful tree.


Saturday, December 6, 2008

I love Max Lucado and I read this on Reece's Rainbow's blogspot today. I felt is was very fitting to post one mine as well. Many of you know that I am adopted and we are about to complete our journey in the finalization of Addy. We are a truly blessed family.

God's Mission: Adoption
by Max Lucado

When we come to Christ, God not only forgives us, he also adopts us. Through a dramatic series of events, we go from condemned orphans with no hope to adopted children with no fear. Here is how it happens. You come before the judgment seat of God full of rebellion and mistakes. Because of his justice he cannot dismiss your sin, but because of his love he cannot dismiss you. So, in an act which stunned the heavens, he punished himself on the cross for your sins. God's justice and love are equally honored. And you, God's creation, are forgiven. But the story doesn't end with God's forgiveness.
For you have not received a spirit of slavery leading to fear again, but you have received a spirit of adoption as sons by which we cry out "Abba! Father!" The Spirit himself bears witness with our Spirit that we are children of God (Rom. 8:15--16 NASB).
But when the fullness of time came, God sent forth His Son, born of a woman, born under the Law, in order that He might redeem those who were under the Law, that we might receive the adoption as sons (Gal. 4:4--5 NASB).
It would be enough if God just cleansed your name, but he does more. He gives you his name. It would be enough if God just set you free, but he does more. He takes you home. He takes you home to the Great House of God.
Adoptive parents understand this more than anyone. I certainly don't mean to offend any biological parents--I'm one myself. We biological parents know well the earnest longing to have a child. But in many cases our cribs were filled easily. We decided to have a child and a child came. In fact, sometimes the child came with no decision. I've heard of unplanned pregnancies, but I've never heard of an unplanned adoption.
That's why adoptive parents understand God's passion to adopt us. They know what it means to feel an empty space inside. They know what it means to hunt, to set out on a mission, and take responsibility for a child with a spotted past and a dubious future. If anybody understands God's ardor for his children, it's someone who has rescued an orphan from despair, for that is what God has done for us.
God has adopted you. God sought you, found you, signed the papers and took you home.
From The Great House of God
Copyright (W Publishing Group, 1997) Max Lucado

Friday, December 5, 2008

WE GOT A COURT DATE!!!!!!!!!!!!!

All of my blogging friends from RR, no not an international one!

Anyway, after waiting MONTHS and MONTHS we have a court date to finalize our adoption of Addy! Yes we have had her for 16 months and it's not final. But as of DECEMBER 16, 2008 it will be official!!!!!!!! YEAH!

Wednesday, December 3, 2008

A Truckers Story

My good friend, Shelley, sent this to me in an email today. I have been bawling my eyes out, but in a good way. There are still good people in this world that accept our children for who they are.

A Truckers Story

If this doesn't light your fire...your wood is wet!

I try not to be biased, but I had my doubts about hiring Stevie. His placement counselor assured me that he would be a good, reliable busboy. But I had never had a mentally handicapped employee and wasn't sure I wanted one. I wasn't sure how my customers would react to Stevie.



He was short, a little dumpy with the smooth facial features and thick-tongued speech of Downs Syndrome. I wasn't worried about most of my trucker customers because truckers don't generally care who buses tables as long as the meatloaf platter is good and the pies are homemade.



The four-wheeler drivers were the ones who concerned me; the mouthy college kids traveling to school; the yuppie snobs who secretly polish their silverware with their napkins for fear of catching some dreaded "truck stop germ" the pairs of white-shirted business men on expense accounts who think every truck stop waitress wants to be flirted with. I knew those people would be uncomfortable around Stevie so I closely watched him for the first few weeks.



I shouldn't have worried. After the first week, Stevie had my staff wrapped around his stubby little finger, and within a month my truck regulars had adopted him as their official truck stop mascot.



After that, I really didn't care what the rest of the customers thought of him. He was like a 21-year-old in blue jeans and Nikes, eager to laugh and eager to please, but fierce in his attention to his duties. Every salt and pepper shaker was exactly in its place, not a bread crumb or coffee spill was visible when Stevie got done with the table. Our only problem was persuading him to wait to clean a table until after the customers were finished. He would hover in the background, shifting his weight from one foot to the other, scanning the dining room until a table was empty. Then he would scurry to the empty table and carefully bus dishes and glasses onto his cart and meticulously wipe the table up with a practiced flourish of his rag.



If he thought a customer was watching, his brow would pucker with added concentration. He took pride in doing his job exactly right, and you had to love how hard he tried to please each and every person he met.



Over time, we learned that he lived with his mother, a widow who was disabled after repeated surgeries for cancer. They lived on their Social Security benefits in public housing two miles from the truck stop. Their social worker, who stopped to check on him every so often, admitted they had fallen between the cracks. Money was tight, and what I paid him was probably the difference between them being able to live together and Stevie being sent to a group home. That's why the restaurant was a gloomy place that morning last August, the first morning in three years that Stevie missed work.



He was at the Mayo Clinic in Rochester getting a new valve or something put in his heart. His social worker said that people with Downs Syndrome often have heart problems at an early age so this wasn't unexpected, and there was a good chance he would come through the surgery in good shape and be back at work in a few months.



A ripple of excitement ran through the staff later that morning when word came that he was out of surgery, in recovery, and doing fine.



Frannie, the head waitress, let out a war hoop and did a little dance in the aisle when she heard the good news.



Belle Ringer, one of our regular trucker customers, stared at the sight of this 50-year-old grandmother of four doing a victory shimmy beside his table.



Frannie blushed, smoothed her apron and shot Belle Ringer a withering look.



He grinned. "OK, Frannie, what was that all about?" he asked.



"We just got word that Stevie is out of surgery and going to be okay."



"I was wondering where he was. I had a new joke to tell him. What was the surgery about?"



Frannie quickly told Belle Ringer and the other two drivers sitting at his booth about Stevie's surgery, then sighed: "Yeah, I'm glad he is going to be OK," she said. "But I don't know how he and his Mom are going to handle all the bills. From what I hear, they're barely getting by as it is." Belle Ringer nodded thoughtfully, and Frannie hurried off to wait on the rest of her tables. Since I hadn't had time to round up a busboy to replace Stevie and really didn't want to replace him, the girls were busing their own tables that day until we decided what to do.



After the morning rush, Frannie walked into my office. She had a couple of paper napkins in her hand and a funny look on her face.



"What's up?" I asked.



"I didn't get that table where Belle Ringer and his friends were sitting cleared off after they left, and Pony Pete and Tony Tipper were sitting there when I got back to clean it off," she said. "This was folded and tucked under a coffee cup."



She handed the napkin to me, and three $20 bills fell onto my desk when I opened it. On the outside, in big, bold letters, was printed "Something For Stevie".



"Pony Pete asked me what that was all about," she said, "so I told him about Stevie and his Mom and everything, and Pete looked at Tony and Tony looked at Pete, and they ended up giving me this." She handed me another paper napkin that had "Something For Stevie" scrawled on its outside. Two $50 bills were tucked within its folds. Frannie looked at me with wet, shiny eyes, shook her head and said simply: "truckers."



That was three months ago. Today is Thanksgiving, the first day Stevie is supposed to be back to work.



His placement worker said he's been counting the days until the doctor said he could work, and it didn't matter at all that it was a holiday. He called 10 times in the past week, making sure we knew he was coming, fearful that we had forgotten him or that his job was in jeopardy. I arranged to have his mother bring him to work. I then met them in the parking lot and invited them both to celebrate his day back.



Stevie was thinner and paler, but couldn't stop grinning as he pushed through the doors and headed for the back room where his apron and busing cart were waiting.



"Hold up there, Stevie, not so fast," I said. I took him and his mother by their arms. "Work can wait for a minute. To celebrate you coming back, breakfast for you and your mother is on me!" I led them toward a large corner booth at the rear of the room.



I could feel and hear the rest of the staff following behind as we marched through the dining room. Glancing over my shoulder, I saw booth after booth of grinning truckers empty and join the procession. We stopped in front of the big table. Its surface was covered with coffee cups, saucers and dinner plates, all sitting slightly crooked on dozens of folded paper napkins. "First thing you have to do, Stevie, is clean up this mess," I said. I tried to sound stern.



Stevie looked at me, and then at his mother, then pulled out one of the napkins. It had "Something for Stevie" printed on the outside. As he picked it up, two $10 bills fell onto the table.



Stevie stared at the money, then at all the napkins peeking from beneath the tableware, each with his name printed or scrawled on it. I turned to his mother. "There's more than $10,000 in cash and checks on that table, all from truckers and trucking companies that heard about your problems. "Happy Thanksgiving,".



Well, it got real noisy about that time, with everybody hollering and shouting, and there were a few tears, as well.



But you know what's funny? While everybody else was busy shaking hands and hugging each other, Stevie, with a big, big smile on his face, was busy clearing all the cups and dishes from the table.



Best worker I ever hired.



Plant a seed and watch it grow.



At this point, you can bury this inspirational message or forward it fulfilling the need!



If you shed a tear, hug yourself, because you are a compassionate person.